MedConfidential, the medical privacy group Big Brother Watch helped to establish, has produced an opt-out letter for Care.Data, the new NHS data sharing scheme.
Below is the plain text and here are three links to downloadable versions.
Dissent from secondary use of patient identifiable data
I am writing to give notice that I refuse consent for my identifiable information and the identifiable information of those for whom I am responsible [delete as appropriate] to be transferred from your practice systems for any purpose other than my medical care.
Please take whatever steps necessary to ensure my / our confidential personal information is not uploaded and record my dissent by whatever means possible.
This includes adding the ‘Dissent from secondary use of GP patient identifiable data’ code (Read v2: 9Nu0 or CTV3: XaZ89) to my record as well as the ‘Dissent from disclosure of personal confidential data by Health and Social Care Information Centre’ code (Read v2: 9Nu4 or CTV3: XaaVL).
I am aware of the implications of this request, understand that it will not affect the care I / we receive and will notify you should I change my mind.
Signature ____________________________________ Date ________________
Information to help identify my records [please complete in BLOCK CAPITALS]
Title _______ Surname / Family name ____________________________________
Date of birth ________________________
NHS number (if known) ___________________________________
Space for additional patient details overleaf