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Patients win choice of sharing medical records


Earlier this year, we led the concern that a new NHS data sharing plan would see every patient's medical records uploaded to a new information system without the right to opt-out. We warned at the time that patient records would be out of patient control. On Friday, the Secretary of State confirmed that this will not be the case. We have worked closely with MedConfidential and Privacy International to ensure

The snoopers charter is dead


More than a year ago, we learned that the Home Office was resurrecting it's plan to monitor every British citizens' internet use. Big Brother Watch led the charge against these plans, giving evidence to Parliament, urging our supporters to write to their MPs and being the central force in the media campaign against the so called Snoopers Charter. We highlighted how the Home Office had misrepresented the work of

Can you support Sgt Danny Nightingale?


Three weeks today, Sergeant Danny Nightingale will report to the Military Court Centre in Bulford, Wiltshire for a preparatory hearing. This is as a result of the Service Prosecuting Authority exercising its right to seek a re-trial of Sgt Nightingale. Like many people, Big Brother Watch has been dismayed at the treatment of Sgt Nightingale. Despite his conviction being quashed at the Court of Appeal,

Boom in private investigators risks avoiding surveillance regulation


Our latest report highlights the growing use of private investigators by local and public authorities, particularly the number of times they are used without RIPA authorisation. The law in the UK, particularly the Police and Criminal Evidence Act 1984, is broadly drawn to allow evidence to be introduced in court that in other jurisdictions would not be deemed admissible. Contrasted with the fruit of the poisonous

Patient records out of patient control?

Posted on by Big Brother Watch Posted in Databases, Information Commissioner, NHS, Privacy | 18 Comments

BCDBu3rCIAAyhwY.jpg_largeToday’s Daily Mail reports on the latest NHS database plan, which will see information held in GP’s surgeries being extracted and transferred to a new central system.

The agenda in the NHS to share data is far more than just monitoring how heath services are used. We may be witnessing the beginning of the end for patient privacy in the NHS.

Ross Anderson, professor of security engineering at Cambridge University, told the paper: ‘Under these proposals, medical confidentiality is, in effect, dead and there is currently nobody standing in the way.’

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Experts warn the cloud’s privacy dangers

Posted on by Emma Carr Posted in Communications Data Bill, Internet freedom, Online privacy, Privacy, Surveillance | 2 Comments

serversThe Government’s use of the Cloud may be put on hold after Members of Parliament raised concerns that the service allows sensitive personal information about British citizens to be spied on by the US authorities.

A European Commission report highlights how the Foreign Intelligence Surveillance Act Amendment Act (FISAA) allows US authorities to spy on cloud data. This could include services such as Amazon Cloud Drive, Apple iCloud and Google Drive.

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“Legal Minds Agree” that CRB is a breach of human rights

Posted on by Emma Carr Posted in CRB check, Human Rights Act, Legal Action, Privacy | 14 Comments

iStock_000016822421MediumIn a landmark ruling, the Court of Appeal has ruled that the law which requires people to disclose all previous convictions to certain employers is a breach of human rights.

In this case, a 21 year old man wanted cautions to be removed from his criminal record. His crime, being accused of stealing two bicycles at aged 11. Information about the cautions had been flagged up when applying for a part-time job at a local football club at the age of 17 and later when he applied for a university course in sports studies.

An urgent reform of the Criminal Records Bureau is required. This case highlights how the Coalition’s reforms have not gone far enough and the CRB system continues to lead to absurd results in too many cases, including thousands of people being wrongly branded criminals.

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Consumers take on Google for Safari snooping

Posted on by Emma Carr Posted in Data Protection, Online privacy, Technology | 1 Comment

4249731778_c071fcb365_oIn a landmark legal action, a group of Apple customers in the UK are suing Google for deliberately snooping on them, after Google despite setting their iPhone security to say they did not want to be tracked.

You can find out more and join the legal action here

The much publicised Safari tracking episode resulted in a $22.5m fine from the FTC in America, however no penalty has been handed out by the UK’s Information Commissioner.  When consumers see their private data being harvested on an industrial scale, with little reaction from the regulators, it is little wonder that they react by taking legal proceedings into their own hands.

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Happy Data Privacy Day!

Posted on by Emma Carr Posted in Data Protection, Information Commissioner, Online privacy, Privacy, Social Networking, Technology | 1 Comment

Image3Happy Data Privacy Day! To mark the day the Market Research Society (MRS) has launched ‘Fair Data, a new ethical mark they claim will help members of the public to easily identify between those organisations which collect, use and retain personal data properly and ethically, and those that do not.

MRS hope that all organisations that collect and use personal data will be able to use the Fair Data mark which will become the instantly recognisable standard for an organisation that can be trusted to do the right think with all individuals’ data.

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Evidence of things not seen

Posted on by Big Brother Watch Posted in Judicial review, Ministry of Justice | Leave a comment

5946829399_e633991652_oThis week, Big Brother Watch submitted our response to the consultation on Judicial Review. In conclusion, we say:

“An overwhelming number of points in the consultation document are anecdotal and unsubstantiated; indeed many are contradicted by official figures. This consultation is absolutely not a document that should be relied upon when embarking on reform of one of our most fundamental legal rights.”

Along with many other organisations, we’ve highlighted the startling lack of evidence in the Ministry of Justice’s consultation document. Anecdotes and unsubstantiated claims are casually deployed to justify reducing the scope of when judicial review applications can be made, but the underlying figures overwhelmingly undermine the department’s claims.

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Councillor resigns in protest of use of ‘lie detector’ tests

Posted on by Emma Carr Posted in Councils, Lie Detector, Privacy | 4 Comments

phone_exchangeA councillor from Cornwall Council has resigned in protest of the council’s use of lie detectors to help catch benefit cheats. We congratulate Councillor Ferguson for taking the the moral high ground when it comes to privacy and proportionality in councils.

Councillor Ferguson took exception to the Council signing up to a contract with Capita to provide “voice risk analysis” as part of a scheme to help combat benefit fraud. The contract comes at a cost of £50,000 with the Council promising that the system could save at least £1 million. However, there is little evidence to suggest that this technology actually even works.

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Greater transparency in police forces

Posted on by Emma Carr Posted in Home | 2 Comments

shutterstock_42647761In a greater step towards transparency, South Yorkshire and Cleveland Police Forces have announced that they will publish full details of dismissals and resignations due to disciplinary circumstances on their websites.

Having raised several concerns about the level of transparency and accountability in the aftermath of  data breaches this is a welcome step. Our research has shown that over a period of three years: 243 Police officers and staff from forces around the country received criminal convictions for breaching the Data Protection Act (DPA); 98 had their employment terminated for breaching the DPA; and 904 were subjected to internal disciplinary procedures for breaching the DPA.

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Teaching kids they have no privacy?

Posted on by Big Brother Watch Posted in Child protection, Civil Liberties, Mobile Phones, Privacy, Surveillance, Technology | 7 Comments

Today’s Daily Mail carries a suitably sensational story courtesy of the Government’s new advisor on childhood. iStock_000017522162Small

According to the piece, “Claire Perry said that in a world where youngsters are surrounded by online dangers, parents should challenge the ‘bizarre’ idea that their children have the right to keep their messages private.” In other words (as the paper’s headline suggests) if you’re a parent, you should “Snoop on your child’s texts”.

We’re not entirely sure how a Conservative MP and a newspaper usually committed to reducing state interference in our lives are able to square away issuing parenting diktats, but more concerning is the total lack of any evidence to support these claims.

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Paperless medical records : where’s the privacy protection?

Posted on by Big Brother Watch Posted in Data Protection, Databases, Information Commissioner, NHS | 7 Comments

3797160719_337b4742e7_bToday’s announcement from the Health Secretary that all patient medical records will be held in electronic form by 2018 has grabbed some headlines, but the underlying privacy risks seem to have been given short shrift.

Paperless records is a nice soundbite but the change creates significant privacy risks. The Department of Health needs to be absolutely clear who will hold our medical records, who can access them and reassure patients that their privacy will not be destroyed in another NHS IT blunder.

Detail on how patients will give their consent, who will have access and what rights patients will have after sharing is sparse. As we have previously highlighted, barely any NHS systems have the ability to give patients the option of seeing who has looked at their medical records. Without this audit trail, abuse is often very difficult to spot.

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