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NHS England’s wholly inadequate leaflet drop

3797160719_337b4742e7_bWhen you check your letterbox for mail this morning, make sure you take a second glance because you might just miss a leaflet from NHS England detailing serious changes to the way our medical records are shared.

Last year we campaigned to ensure that patients have the right to opt-out of these changes, however, despite this victory for patient privacy, NHS England has taken the decision that if patients do wish to opt-out of sharing their medical records then they must visit their GP to do so. Given GPs are already very busy, people should not have to see their GP to opt-out of the system. It should be possible to opt-out online or over the phone, and people who opted out of previous NHS IT projects, such as the Summary Care Records, should have their choice carried over for this system.

This scheme is a fundamental change in the way our medical records are processed, so for the NHS to rely on the sort of leaflet drop you’d expect from a pizza shop is not good enough. Such a lacklustre scheme to inform the public is arguably illegal under data protection law and goes against the Government’s commitment to give patients control over their medical records. Clearly a huge amount of people will not see a leaflet dropped among the usual junk mail and it is surely right to expect that where our medical records are concerned, we should receive a personal letter at the very least.

Our research has highlighted that data protection regulation, which in theory should protect patients from having their information accessed unnecessarily, does not stop serious data protection breaches from occurring. Our medical records contain our most personal information and given the real privacy concerns about amassing a huge central database of patient information, the NHS should be showing far more respect than such a lazy effort to inform people about these changes.

If the NHS wants to share patients’ information with increasing amounts of third parties it is arguable that they have a duty to take extra steps to ensure that patients feel as though they have control. The Department for Health must stand by the Governments commitment to give patients more control over their medical records and recognise that this leaflet drop is wholly unacceptable.

UPDATE

medConfidential has created a letter that you can download and give to your GP practice to opt-out of the changes to your medical records

Posted on by Emma Carr Posted in Data Protection, Databases, Medical Records, NHS

6 Responses to NHS England’s wholly inadequate leaflet drop

  1. Rwthless

    Whatever privacy we have seems breached if we can be written to to tell us to give up drinking but fails to tell us that we can opt out.

    I’m in favour of any doctor I visit being able to catch up with all recent tests taken like BP, Cholesterol etc before treating me. I don’t regard my own physical body as very important or private but accept that others feel differently about it.

    • Jane

      @Rwthless – from what I’ve read at http://www.care-data.info/ it will not enable sharing of your information with other doctors, and so won’t be able to share information about recent tests

  2. John

    This item was discussed in an interview the Today programme this morning in a pretty disgraceful display of lazy hackery.

    Some doctor from the NHS was on and plugging this as some kind of minor change which would (I kid you not) “improve the patient experience”. At no point were the data sharing implications for individuals even touched upon.

    And is another sad episode for the declining Today programme, nobody pressed the issue either. He was allowed a free run at it.

  3. Anon

    This is a huge change and one that many doctors and others in the medical world do not appreciate. Actually they have never appreciated confidentiality in my experience. They say they do and then breach the data protection act due to ignorance all the time and are then surprised when you point this out.

    I have opted out of this new change and the letter from medConfidential was useful for this. How many more changes will the government make until they finally get all of our data without us being able to prevent it? I try to use the NHS as little as possible these days.

  4. Phillip Dundston

    Emma, you make it sound like an accident. I am willing to bet it was deliberate (though I won’t assume that outright, as we don’t know, but keep an open mind).

  5. Pingback: GP exposes bullying tactics behind care.watch data scheme. | glynismillward189

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